Journey has had his fair share of complications in these eight months on this earth. As his mother I know just about everything there is to know about this little angel of mine. His breathing has been raspy for as long as I can remember and yet we have yet to find the cause of this. However, when I noticed there was something else wrong I called his doctor right away. He has a wheezing in his breathing that I could feel through his chest and back. He also was not sleeping and crying all the time and had a temperature that was a little on the high side.
When the doctor had the idea that he might have pneumonia he sent us directly to the hospital. My thirty minute doctors appointment has now turned into a five hour wait at the emergency room. Trust me I would rather have nails drilled into my toes then wait in an emergency room with many many sick people when my child is sick. Anyways, it wasn't until the chest x-rays came back that I found out that my little angel, indeed, had pneumonia.
This is so awful! I hear news about people, babies and perfectly healthy grown adults, dying from complications with pneumonia. What does this mean for my little baby, who has already gone through so much in his short little Journey??
I left that hospital around 1:30 in the morning with antibiotics and inhaler and numerous "rules" that the doctor has given me. Journey now lives off of a nebulizer machine along with many additions to his daily medication routine. By the way, I am not one to give my children medication either. I have studied holistic medicine and natural approaches but Journey has just put me at a loss.
Journey is doing better. He still smiling and still laughing and being the same old enjoyable angel we all know him to be. He is such an inspiration to my life. My worries all seem to melt away when I realize how strong the two of us are. I feel we can get through anything.
Tuesday, April 9, 2013
Monday, April 8, 2013
Mother of 4
Today Journey turns 8 months. I absolutely can not believe how fast that time flies by. Everything my son has done so far have made me so proud. Our family has come a long way since last summer. His health continued to get better and my hopes are getting higher. I have slowed down all my research on Down Syndrome specifically and m focusing more on...well...parenting in general. I have put so much pressure on myself to know absolutely EVERYTHING there is to know about my son's diagnosis that I got lost in the knowledge and forgot why I wanted to be a parent in the first place.
Journey is my son, and he is my son above everything else. So I take my time to learn about HIM and not his diagnosis for a while. Journey loves smiles and if he smiles at you he knows you will smile back. He seems to do this to lighten me up out of a stressful mood and makes me realize what's more important. He has taught me to take the time to enjoy the moments I have with him and I don't take one moment for granted. Journey loves to watch sports in the morning. He expects a bottle of juice for a snack around lunch time. He loves to play piano on Daddy's tablet. He says "mama" and "dada". I noticed he always looks up to his big brother and I can see he is studying him. He loves when I sing to him Danny's Boy or Sunshine. He is also very ticklish and loves to giggle. He is a typical little boy and I am lucky I get to know him.
Also I am the parent of three other children as well and one is not more special than the other. Kiana is so smart and beautiful. I often see her as older than she really is because even though she is 6 years old she acts much older. I see her running her own life and being independent. She is obsessed with vampires and Monster High. She is so good with her baby brother and will stop doing anything she is doing to help take care of him and help me out.
Edwin is growing to be such a great little man. He is my biggest helper all of the time and I just know one day he is going to make some girl very happy. He is full of love and always looking for ways to help the girls in his family. He is protective of his sisters and baby brother. He loves super heroes and enjoys spending time with his daddy playing basketball. I just registered him for kindergarten for the fall and he is super excited to go.
Shelby loves to dance and does everything just like me. She is my little mini me and I'm trying to get her into head start. She is pretty smart and really stubborn just like her mother. She loves having her hair and nails done and loves dressing up. She is very girly.
Next I hope to learn something new about myself. Spend some time on me and find out who else I am. I know the majority of me is a mother, but I'm also an aunt, a daughter, friend and wife. There is more to me that I just haven't learned yet because I have never taken the time to learn it. So that is definitely something I plan to take the time to work on.
Journey is my son, and he is my son above everything else. So I take my time to learn about HIM and not his diagnosis for a while. Journey loves smiles and if he smiles at you he knows you will smile back. He seems to do this to lighten me up out of a stressful mood and makes me realize what's more important. He has taught me to take the time to enjoy the moments I have with him and I don't take one moment for granted. Journey loves to watch sports in the morning. He expects a bottle of juice for a snack around lunch time. He loves to play piano on Daddy's tablet. He says "mama" and "dada". I noticed he always looks up to his big brother and I can see he is studying him. He loves when I sing to him Danny's Boy or Sunshine. He is also very ticklish and loves to giggle. He is a typical little boy and I am lucky I get to know him.
Also I am the parent of three other children as well and one is not more special than the other. Kiana is so smart and beautiful. I often see her as older than she really is because even though she is 6 years old she acts much older. I see her running her own life and being independent. She is obsessed with vampires and Monster High. She is so good with her baby brother and will stop doing anything she is doing to help take care of him and help me out.
Edwin is growing to be such a great little man. He is my biggest helper all of the time and I just know one day he is going to make some girl very happy. He is full of love and always looking for ways to help the girls in his family. He is protective of his sisters and baby brother. He loves super heroes and enjoys spending time with his daddy playing basketball. I just registered him for kindergarten for the fall and he is super excited to go.
Shelby loves to dance and does everything just like me. She is my little mini me and I'm trying to get her into head start. She is pretty smart and really stubborn just like her mother. She loves having her hair and nails done and loves dressing up. She is very girly.
Next I hope to learn something new about myself. Spend some time on me and find out who else I am. I know the majority of me is a mother, but I'm also an aunt, a daughter, friend and wife. There is more to me that I just haven't learned yet because I have never taken the time to learn it. So that is definitely something I plan to take the time to work on.
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